So, currently my blood results are good. After months of not really knowing what’s been going on, and not getting the desired results. It’s a relief to say the least. So really everything apart from platelets are fine. Looks like the Rituximab and steroids and cocktail of other pills seem to be doing the trick. As it is, my platelets stand at 15. Last week they were 5, so small victories... I’m currently taking eltrombopag, which is a platelet booster and I’ve been started up on my sirolimus again, but only a small dose, which seems to have helped my platelets. Got to lot having a rare immunity disorder, right? Anyway, the real aim of this post is to enlighten people about CVID, which I realise I’ve never really talked about. Not like I have everything else anyway. CVID, which stands for common variable immunodeficiency, is a primary immune disorder. There’s nothing common about it, as only 1 in 50, 000 people are diagnosed, though I’m sure that means there are ple...
This blog will mostly be focused on the considerable amount of my life that I've spent in hospital, and my strong opinions on this.